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May. 1st, 2013 11:03 am![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
becomingkateWarning for discussion of medical conditions and procedures and surgery.
So it seems my refusal to see my specialists is catching up with me.
I was born with spina bifida and I have a lot of stuff I have to deal with that are side effects of the surgeries and just the defect in general. I had 14 surgeries by the time I was 12 (or was it 12 surgeries by the time I was 14?) and I have life long things to maintain. I do keep up with it to a minimum but you can probably understand that after being poked and prodded and literally invaded for so long, I pretty much went on doctor strike when I moved out of my parents' house. I would see a regular doctor for annuals pretty regularly but that was about it. I took care of stuff on my own and I have been relatively healthy ever since.
A few months ago I started having upset stomach and diarrhea an awful lot. Because of my condition, I do get that more than the average person but it was getting out of control. I had to be near a bathroom pretty much all the time and if I was away from a bathroom for an extended amount of time my anxiety would kick up and make it worse. I eventually had to quit my job as a bus monitor, I was so nervous about not being near a bathroom. I decided enough was enough and I went to a urologist locally to see if my bladder issues had anything to do with this. He did some procedures and informed me I had bladder stones, which were probably not related to the diarrhea but still should be taken care of. He gave me some pills to take for 3 months that would maybe dissolve them and if they did not, I would probably need surgery.
I went for the follow up the day the Boston Marathon suspect number 2 was on the loose and they shut down the college in my town. I took my son, who was on vacation, to the dr. with me and we sat in the waiting room where the tv was on the news and everyone was stressed out and angry. It was not a good day. I found out that 4 people were still ahead of me and he was running way behind so I rescheduled and went home.
I found out yesterday the pills did not work. I have a doctor in Boston, one of the ones I was supposed to be following up with all these years. I've seen him since I was a kid and he was assisting the day my son was born (I needed a c-section). I haven't seen him since. So I have an appt. in June to see what he says. I'm actually hoping he says there is something he can do besides surgery. Fingers crossed!
The funny thing is I'm not even nervous about the surgery. It sounds relatively easy-I guess when they've inserted tubes into your body and reconstructed your bladder and repaired your spinal cord, a lot of things sound easy.
So it seems my refusal to see my specialists is catching up with me.
I was born with spina bifida and I have a lot of stuff I have to deal with that are side effects of the surgeries and just the defect in general. I had 14 surgeries by the time I was 12 (or was it 12 surgeries by the time I was 14?) and I have life long things to maintain. I do keep up with it to a minimum but you can probably understand that after being poked and prodded and literally invaded for so long, I pretty much went on doctor strike when I moved out of my parents' house. I would see a regular doctor for annuals pretty regularly but that was about it. I took care of stuff on my own and I have been relatively healthy ever since.
A few months ago I started having upset stomach and diarrhea an awful lot. Because of my condition, I do get that more than the average person but it was getting out of control. I had to be near a bathroom pretty much all the time and if I was away from a bathroom for an extended amount of time my anxiety would kick up and make it worse. I eventually had to quit my job as a bus monitor, I was so nervous about not being near a bathroom. I decided enough was enough and I went to a urologist locally to see if my bladder issues had anything to do with this. He did some procedures and informed me I had bladder stones, which were probably not related to the diarrhea but still should be taken care of. He gave me some pills to take for 3 months that would maybe dissolve them and if they did not, I would probably need surgery.
I went for the follow up the day the Boston Marathon suspect number 2 was on the loose and they shut down the college in my town. I took my son, who was on vacation, to the dr. with me and we sat in the waiting room where the tv was on the news and everyone was stressed out and angry. It was not a good day. I found out that 4 people were still ahead of me and he was running way behind so I rescheduled and went home.
I found out yesterday the pills did not work. I have a doctor in Boston, one of the ones I was supposed to be following up with all these years. I've seen him since I was a kid and he was assisting the day my son was born (I needed a c-section). I haven't seen him since. So I have an appt. in June to see what he says. I'm actually hoping he says there is something he can do besides surgery. Fingers crossed!
The funny thing is I'm not even nervous about the surgery. It sounds relatively easy-I guess when they've inserted tubes into your body and reconstructed your bladder and repaired your spinal cord, a lot of things sound easy.
